I really wish that drug companies would really take a good look at peripheral neuropathy and ways to avoid it. Peripheral neuropathy is nerve damage, usually on the hands and feet and it causes numbness which may also be accompanied by pain which is often described as "burning" or "pins and needle" type pain. Many different types of chemo have peripheral neuropathy as side effects, particularly the Taxanes (Taxol, (paclitaxel), taxotere (docetaxel). Many other drugs also cause it, such as Abraxane, Halaven (eribulin), platinum based drugs (Cisplatin for example), Thalidomide and Bortezomib among others. About.com Breast Cancer has a pretty good listing of drugs which may cause it. You can find it here.
People who have pain associated with it are often given drugs to help, many being drugs prescribed for neuropathy associated with diabetes. Fr those of us who just have the numbness, well.....they are still trying to work out things to help us. Usually, B vitamins (B-1, B-6, B-12, ) and vitamin E are suggested....but they never helped me.
I have had some neuropathy from Taxol (1998), Abraxane (2010-2011) and now Halaven. It never completely went away, but at least after 6 months of being off Abraxane, I could feel below my knees.
Granted....mine is severe, compliments of having had so much chemo. I cannot feel my hands and feet at all, which makes for interesting typing. It may seem like something silly, but it affects my balance. I can't get feedback from the ground to tell me if I am losing my balance,until I've already toppled. Buttoning and unbuttoning things, opening containers, and other "simple" tasks become almost insurmountable. couple of years ago, I sprained my ankle as I thought I had picked my foot up high enough off the ground to step over some plastic....only to get my foot tangled in it and causing a fall. I was fortunate I didn't do anything worse.
Presently, I have been taking a month long break as it has made it so difficult to do so many things. However, it isn't long enough to see any real positive results. I have also been experiencing muscle weakness, or peripheral motor neuropathy in my legs----I put my weight on one of my legs only to have it collapse underneath me, and I cannot get up by myself unless there is something nearby to help me pull myself up. It has also made quilting very difficult.
I told my oncologist that the neuropathy was causing me to walk like Frankenstein as I couldn't feel my feet, and they don't respond well, so I sort of have a "dropped foot." This change in gait may have been the cause for a tightening of tendon in the back of my calf, or it may have been just another side effect of Halaven as it has gone away with the break, even if the neuropathy is still substantial.
If you experience peripheral neuropathy, you need to keep some things in mind:
People who have pain associated with it are often given drugs to help, many being drugs prescribed for neuropathy associated with diabetes. Fr those of us who just have the numbness, well.....they are still trying to work out things to help us. Usually, B vitamins (B-1, B-6, B-12, ) and vitamin E are suggested....but they never helped me.
I have had some neuropathy from Taxol (1998), Abraxane (2010-2011) and now Halaven. It never completely went away, but at least after 6 months of being off Abraxane, I could feel below my knees.
Granted....mine is severe, compliments of having had so much chemo. I cannot feel my hands and feet at all, which makes for interesting typing. It may seem like something silly, but it affects my balance. I can't get feedback from the ground to tell me if I am losing my balance,until I've already toppled. Buttoning and unbuttoning things, opening containers, and other "simple" tasks become almost insurmountable. couple of years ago, I sprained my ankle as I thought I had picked my foot up high enough off the ground to step over some plastic....only to get my foot tangled in it and causing a fall. I was fortunate I didn't do anything worse.
Presently, I have been taking a month long break as it has made it so difficult to do so many things. However, it isn't long enough to see any real positive results. I have also been experiencing muscle weakness, or peripheral motor neuropathy in my legs----I put my weight on one of my legs only to have it collapse underneath me, and I cannot get up by myself unless there is something nearby to help me pull myself up. It has also made quilting very difficult.
I told my oncologist that the neuropathy was causing me to walk like Frankenstein as I couldn't feel my feet, and they don't respond well, so I sort of have a "dropped foot." This change in gait may have been the cause for a tightening of tendon in the back of my calf, or it may have been just another side effect of Halaven as it has gone away with the break, even if the neuropathy is still substantial.
If you experience peripheral neuropathy, you need to keep some things in mind:
- Be aware that you may not be able to feel hot or cold surfaces and you may burn yourself---(particularly on my hot deck which gets no shade!)
- Always wear shoes and socks to protect your feet as you may injure them without really feeling it.
- Check your feet before you go to bed to make sure you don't have any cuts, fissures or problems on your hands and feet.
- Wear gloves when doing housework and gardening. You must take every precaution to protect your hands.
- You may have cramping and slowed or loss of reflexes (my games of Bejeweled are way off!).
- Use handrails even if you don't think you need to. Better safe than sorry.
- If you have weakness in your legs like me, or balance issues, by all means get a cane. Hopefully, it will only be temporary, but it is a heck of a lot better than sporting the bruise I currently have on my knee.
- Another thing, limit alcohol as it may make things worse.
Another wonderful side effect? It can cause constipation, as well as loss of muscle mass and strength.
Yeah. Cancer isn't for sissies.
Sorry....no photo...the only thing I could think of using was a shot of my now yellow bruise on my knees
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